My dad is in his final days. He wants to see his grandchildren, great grandchildren, and his sister and we’re going to make it happen. It won’t be easy; Daddy and his wife are frail and Aunt Kitty. His wife is visually impaired and Daddy has dementia on top of everything, so the bulk of the load falls on my niece, Brandi, who is his 24 hour caregiver. My brother and I are supplying love and financial support.
The logistics of traveling with a hospice patient requires contracts and coordination. Besides the rental car, there are the obvious medical needs. Daddy is planning seven nights on the road, four at our home and three in a hotel in South Carolina. He sleeps about two hours at a time. Dementia is challenging; sometimes he’s with us and sometimes he’s not.
Brandi asked me whether I was sure I didn’t want them to stay at a hotel. No, he’s my dad. Her response was, “But he’s a handful!” Yes, I know. His medications have been adjusted and titrated, and sometimes he’s okay but sometimes he’s not.
Food restrictions? “No shrimp, catfish, pork, or anything like that,” she said. “And no spaghetti. He doesn’t like pasta, spaghetti sauce, and nothing with any red dye. He’s very worried about red dye right now.” Hmmmm…red dye? He might have dementia but he has very specific opinions.
My daughter is working on sleeping arrangements but we’re not sure what we’ll need beyond that. We’re playing this by ear.
His brother waited until he saw my dad, and was gone before Daddy got out of the driveway. Last wishes can be tricky, especially with someone so frail.
This will be interesting. I want to make this next week memorable for everyone. He’ll see his grandchildren and great-grandchildren. I had not heard the lyrics to Carly Simon’s “Like a River” in a very long time, but she talks about how she is no longer waiting for her mother, as a daughter, as the part of their lives together is over. I have wanted my dad to come and visit ever since we moved here, but I never really pushed it because of his health. He’s coming this time on his terms, and I will cherish whatever days I have with him. It is his last wish.
I have certain movies that I watch for different reasons. I can watch Brian’s Song and cry without anyone questioning whether I’m okay. Airplane makes me laugh myself silly and the quotes sometimes come out at the most inappropriate times. And right now, the thought that comes to mind is, “I picked the wrong week to stop sniffing glue.” I have to find humor wherever and whenever I can.
But to quote Gone with the Wind, “Tomorrow is another day.”